World #193

I’ve always been imaginative. I’ve conjured whole worlds and filled them with little denizens, each with their own thoughts and sense of meaning and purpose. Behind my eyes, a society could rise, crumble, and fall to the whims of I, the creator. Wielding power and happiness as weapons in my creative pathos, I was, at best, grandiose and, at worst, simultaneously spurious.

Happiness as a weapon. That’s how she had used it. She desired obedience and rewarded compliance with her brand of your assumed joy. Your unsolicited satisfaction was never okay, it sparked fights and fueled debate. She brought you down, down like your societies. She, not you, controlled the worlds behind your eyes. You, like a wounded animal, lashed out in childish rage and succumbed quickly to her agile intelligence.

I remember childhood. Roaming like a nomad, I explored every inch of my hometown from the rotted and rusting steel mill to the darkest corners of the ancient cemetery. Fearlessly irresponsible, I waded through the worlds of my mind and devoured ideas, source material, and the occasional inhalation of toxic waste fumes. Childhood wasn’t a safe place. At the end of the day’s journey, there were never going to be feasts of chicken nuggets and desserts of fruit roll-ups. There would, however, be a reckoning. There always was, and so it went.

She waited there — hovering at the end of your exploration. She knew what you desired, what you longed for, what you’d hoped to achieve. She knew that she could train you. Eagerly, you allowed this. It started out so simple. She aggressively and, yet so, subtly edged you towards submission. She made it easier to comply than to disagree. It started as innocuous as a coaster on a wooden surface. A way to protect and honor her wishes. She guided and coaxed you. She formed your opinions for you. Learning quickly, you adapted, you conformed, and you died a little more each day.

Dying. That’s what the denizens of my worlds always do. They have ever suffered the wrath of my whims. My desire to regain some semblance of control. So, I created you, in this world, and I set the tides against you. She would never have allowed me to keep you. I wouldn’t have fought her. This is for your own good as it has been 192 times before.

Once more, I can be happy – if she says so.

I can’t die, I still have to… (excuses/reasons to live) REDUX

write a book

publish a book

publicly admit that I write poetry

own an antique typewriter that works

inspire someone If I inspire you, let me know, it’s not your praise I seek… I just want to help. 😉 In fact, let each and every person that inspires you know that they’ve helped you in some way before they are gone and can no longer smile inside their hearts knowing they did something great.

leave a letter in a book at the library for someone else to find

start my own business

successfully run a business

use my successful business to give back to the world in some way

learn to play the guitar

relearn to play the piano

start my own web community

write over 500 blog posts

give a TED talk

own a record player

run walk in and complete a 5K

quit a job that I really hate.    link

find a job I love

climb to the summit of a mountain

travel to Egypt and see the pyramids

graduate from college

survive student loans

find a job where I can wear jeans and comfortable shoes to work

buy a house

lose 300lbs   I currently weigh 220 and I love it!

build an old fashioned library for Laura and

fall in love.

stay married. (in progress, thanks Laura!)

have children

fly a plane

fire one of the rifles from my video games

ride a gondola in Venice, Italy

ride every adult-sized roller coaster in the United States

have a vegetable garden

have a vegetable garden, successfully

time travel

send a message in a bottle

pay for a random person’s dinner without waiting for the thank you

learn to paint on canvas

pack some clothes and go on a random road trip to meet random people in random towns all while writing a book incorporating the stories of little American towns

utilize the same trip to find the best local food

dance in the rain

choose education path

take the GRE

submit application for Masters

submit application to Ph.D. school

become Dr. Sedberry (not medical, just an expert title)

survive cancer 

code a text adventure game

try something new once a month for the rest of my life

cook more often than eating out

write at least 6 handwritten letters before 2015

write a song

revive the MFTT story

spend time with friends

make new friends

make an effort to talk to new people

choose our own adventure

have children

Stolen Samples – Cancer Diagnosis

It seemed like an eternity had passed. The doctor had left with stolen samples of my neck tissue. Laura, my wife, rocked on her heels, waiting and watching for the door to crack open and spill the truth about my diagnosis. Her hand searched out mine and found it grasping firmly. I looked into her eyes and lied to her for the first time in my life, I said, “It’s going to be fine.”

The doctor returned wearing a professional and yet somehow cold smile. Her lips parted and out rolled the sum of her expertise.

“Mr. Sedberry upon my initial examination you have cancer. I cannot tell you what specific kind you have until the test results come back on Monday,”

My sanity began to waver but I caught sight of Laura. The look on her face was terrifying. I could see in her eyes that her world was crashing down around her, all of her hopes and dreams were shattered upon the floor. Her eyes were swelling to the brim with tears and she broke into a sobbing, blubbering mess.

I reached out and pulled her deep into an embrace. As her tears soaked my shirt,  I realized that I must stay strong for her and I instantly buried all emotion. I tell her “We will get through this.” I don’t know that I believe it but my words help Laura regain her strength. As Laura grows stronger I felt myself tightening up and sealing in the edges.

Laura kissed me, looked deep into my eyes and said, “Don, I love you, we will get through this, I promise.”

I make the effort to look unconcerned and say with finality, “I know, I love you so much..” I had never felt such fear in my life. I thought that I was going die almost immediately, like I had run out of time, I couldn’t catch my breath and I felt like I was falling fast to the ground. There’s nothing more dizzying than a cancer diagnosis. Worst of all I felt I had to hide those feelings from Laura, that was a mistake I would never redeem myself from.

It all starts somewhere…

The descent into Cancerville began on a week like any other. The only difference was that my throat had become a little ticklish and I had an occasional irritating cough.  There wasn’t any real indication of something dangerous. My week was a simple schedule, no work, my biggest concern was choosing between two job options. I had just graduated from college and I was either going to work for The Prosper Group or for Givelify. I was on top of the world; I was excited for myself that life was just working out..

My throat progressively got worse and a lump developed on the side of my neck and I eventually went to an immediate care clinic, run out of Community East Hospital, to check to see if I potentially had strep throat or something similar. The doctor looked perplexed and suggested that I had a goiter. I didn’t believe his diagnosis because in my mind a goiter is caused by a lack of iodized salt and I live in America… land of the salty goodness. It started to worry me that I didn’t know what was actually wrong with me, though had no idea that cancer was a consideration at this point. I remember being afraid, but not knowing why, or what to be afraid of.

It was ultimately a good thing I didn’t believe him. Within a day, the lump grew in size to the point that it started to crush my windpipe and it increased the pitch of my voice considerably. I spoke high-pitched like a small female child. I remember becoming something just short of terrified as we rushed to the emergency room.

This also caused Laura to panic. While I was at the Community East Emergency Room, Laura informed the physician’s assistant that I had taken pain medicine and drank a bit of beer (honest mistake, I poured it out as soon as I realized it was a bad idea). However, that’s all it took for the physician’s assistant to assume that my high pitched voice was the result of that stupid sip of beer and not of a larger issue. She refused to care about the massive lump in my neck and continued with the assumption that it was a goiter and a subsequent allergic reaction. I was extremely frustrated and did my best to let the physician’s assistant know it, but she never let me talk to the actual doctor because I wasn’t deemed important enough. I will never forget my treatment at Community Hospital and I will never ever return there for anything.

If you are certain you are right, or that your questions and illness isn’t being properly cared for, speak up! Don’t let assumptions ruin your health care!

We called my primary care physician and let him know about my condition. He recommended an ear nose and throat specialist and he in turn ordered a biopsy be performed after looking down my throat and noting no internal reasons for the swollen lymph nodes.

Greetings from the world formerly known as Cancerville

The only thing that sucks more than living through cancer is dying from it. That may sound morbid, but it is absolutely true. Before I survived cancer I had absolutely no idea how powerless I was capable of becoming.

cancerville
It’s amazing how weak chemotherapy can make you…more on that later.

It’s hard for me to accept that anyone, even my wife Laura, could possibly understand what I have been through in my fight against cancer. I don’t want to come off as arrogant or pompous. I have a difficult time explaining all that I have been through so it follows that it might be difficult for someone who hasn’t been through it to understand.

That’s what this is about. It is my intention to explain what I have been through both for me and for others. It is my hope to generate understanding in those who have been by my side and to help prepare someone with a new diagnosis of cancer for things to come.

I have the benefit of a highly logical and analytical mind as well as a deeply caring heart. Over the next several posts, I will do my very best to be as thorough and transparent as possible, giving a complete emotional and analytical breakdown of the story.

I also want to offer up an “open email policy.” My contact information is available on this website and I offer up myself as a resource in the future. Please reach out to me via email with any questions or comments. I promise to respond to any requests for additional information and fellowship.

I am looking forward to getting this off my chest and out of my head… I hope it does some good in this world.